In this newsletter we introduce you to the IDEA4RC Community of Interests, a series of activities aimed at engaging various stakeholders in the development of the IDEA4RC rare cancers data ecosystem…
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In this newsletter we introduce you to the IDEA4RC Community of Interests, a series of activities aimed at engaging various stakeholders in the development of the IDEA4RC rare cancers data ecosystem…
Source: Newsletters – Home
In this newsletter we update you about the fourth plenary meeting of the IDEA4RC consortium, which took place at the National Cancer Institute in Milan on 29 and 30 April. We also share with you a new animated video introducing IDEA4RC, its vision and its ultimate goals.
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Partner MME, co-organized in cooperation with the Association of Medical Doctors of the Province of Parma a Workshop titled “Advancements in Quality-of-Life monitoring after oncology treatment”.
The Workshop has been organized as part of the national Continuing Medical Education program (ECM), assigning formative credits to Medical Doctors, thus leveraging BD4QoL results and contributing to train MDs towards the deployment and exploitation of new digital technologies investigated by BD4QoL and beyond.
The workshop agenda has been articulated into three interrelated parts:
The event has been attended by 50 Medical Doctors, who completed the final evaluation questionnaire, as well as representatives from local medical associations, including the local chapter of LILT (Italian League of Fight Against Cancer).
In this newsletter we dive into the legal aspects of IDEA4RC. What legislation should be taken into account when developing an ecosystem that facilitate the re-use of health data on rare cancers for research purposes in the EU? What are the main challenges? What changes are occurring in the legal framework of the EU concerning health data? We asked these questions to Vasiliki Tsiompanidou, legal researcher at ECCP and partner of the consortium…
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BD4QoL 6th Plenary Meeting took place on February 22-23, 2024 in Bilbao. The meeting was held in mixed modality, in person and virtually, hosted by University of Deusto.
Source: 6th Plenary Meeting