In this newsletter we dive into the legal aspects of IDEA4RC. What legislation should be taken into account when developing an ecosystem that facilitate the re-use of health data on rare cancers for research purposes in the EU? What are the main challenges? What changes are occurring in the legal framework of the EU concerning health data? We asked these questions to Vasiliki Tsiompanidou, legal researcher at ECCP and partner of the consortium…
Source: Newsletters – Home
BD4QoL 6th Plenary Meeting took place on February 22-23, 2024 in Bilbao. The meeting was held in mixed modality, in person and virtually, hosted by University of Deusto.
Source: 6th Plenary Meeting
Il Progetto BD4QoL collabora con L’Ordine dei Medici Chirurghi e degli Odontoiatri della Provincia di Parma – nell’ambito del ciclo “I Martedì dell’Ordine” – coorganizzando il 19 Marzo 2024 una serata dedicata ai progressi nel monitoraggio della qualità della vita dopo il trattamento oncologico.
The EU Council and the European Parliament have reached a provisional agreement on a new law that will make it easier to exchange and access health data at EU level.
Source: European Health Data Space: Council and Parliament strike deal – Consilium
As IDEA4RC enters its second year, consortium members gathered in Madrid to discuss the steps ahead and the key milestones for the second year. It was the occasion to start discussing possible governance approaches, functionalities of the virtual assistant, which will allow researchers and clinicians to interact with the data ecosystem, and kick off the activities regarding natural language models. These models will be developed to extract relevant information from textual documents, such as medical notes and pathology reports.
Source: Hot takes from the third consortium meeting in Madrid – Home
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